Thursday, February 25, 2010

Look at What I Can Do

Emma Claire's RT: Stochia; Primary: Stacy and Secondary: Suzannne (day time staff)
They take such great care of Emma. She does have other RT's, but they were all matching yesterday, so we had to take a pic!

Look, no vent tube!!! Emma Claire self-extubated on Tuesday morning and has been on the nasal cannula and Vapotherm since then.

I love my 'binky'. Since she keeps her mouth open all of the time, she likes to suck on her 'binky' and helps keep her mouth closed a little bit!

Emma Claire has a good day and night on the vapotherm. Dr. Rojas is going to keep her on the vapotherm and IF she needs to go back to the ventilator we will address that. She lost a little weight last night, but only back down to 2 lbs 2 ounces (just about 20 grams), but that is probably due to her working harder not being on the ventilator. When I talked with Dr. Rojas this morning he had not done the calculations to determine if he will increase her feedings.

Dr. Rojas has noted the PDA (murmur) does sound softer and we continue to believe God is closing it. They are not worried about it, so we don't worry about it and I don't even ask about it anymore unless one of her nurses gives me an update from the doctor of the week.

Emma continues to have wet and poopy diapers. They are going to give her three steroid shots to help with her trachea swelling which was caused from being intubated (on the vent) for so long. We heard her cry for the first time yesterday when her RT was giving her a breathing treatment and using a small tool to vibrate her chest and back to loosen any mucous she might have. This helps since they can no longer suction it out of her lungs. She is able to cough it up and get it out that way. In the midst of this, she started to cry since it makes her mad, and it was such a sweet sound eventhough it was a little squeal, it was good to hear her make noise.

1 Samuel 1:27 ~ For this child I have prayed and the LORD has given me what I have requested.

The above verse is so special to me. I have prayed for this child for sometime, eventhough it did not take us long to get pregnant it seemed like such a winding road, through my miscarriage in March of 2008 and going through different test to find out I had a clogged fallopian tube from the D&C. I was ecstatic to find out I was pregnant and I just knew everything was happening in God's perfect timing and everything was going to work out this time. I thought, "This is perfect for my work and personal schedule" for travel and everything else I am involved in, but God had different plans laid out for us. In all of this, I have not thought 'Why Me', but thank you God for choosing us to be the parents of this special little girl. How lucky we are he choose us as he choose Hannah to the the mother of Samuel. We never know about God's timing, but one thing we can know is that it is PERFECT, no matter what. His timinig has always been perfect in my life and I take heart in knowing that and he will never let me down.



  1. Amen!! Love the pic with her mouth open and cute, big belly! Keep eating little one!!
    ~Gerry G.

  2. Emma Claire's progress is amazing and wonderful to witness like this. She looks great from here in California. Thank you for sharing these pictures and so much of your faith. God is great!
    Our warmest wishes for all of you.
    Steve and Carol Storm

  3. Great to hear things are still going well for y'all. Keeping y'all in my prayers. Hang in there!

  4. Wow, she looks so good and is doing so well! Keep it up little Emma!!!

  5. God continues to work. I think about you guys all the time and can't wait to see Emma playing in the yard. I printed off a picture and took it to Pa the other day. He was amazed. We are all praying for her to continue progress. Hugs and kisses from Aunt Tammy.